Sunday, January 11, 2009

Fibromyalgia and Pain - Survey for the American Pain Foundation

Dear APF Member,

The American Pain Foundation and the National Fibromyalgia Association are committed to reaching out to individuals who live with pain. We are well aware of barriers to effective pain care that can be attributed to insurance company policies, no matter what the pain problem. APF and NFA have been provided a special opportunity to work on this issue and are first focusing on the pain care issues of those with fibromyalgia. In particular, we would like to know how delays or denials in insurance coverage impacts access to care.

In December 2008, APF surveyed its members in Maryland, Delaware, District of Columbia, Pennsylvania, Virginia and West Virginia as Phase 1 of the pilot project. As result of an overwhelming response to the survey, we are expanding the next phase of the project to a national audience. If you completed the first survey, we thank you and invite you to take part again to answer additional questions. If you did not have the opportunity to participate in the earlier survey, please take part now. Please feel free to forward this email to anyone you know with fibromyalgia.

APF and NFA invite you to share your insight on this topic by completing our online survey. This survey will be summarized and shared with you at a later date. Won’t you take just a few moments of your time and let us know more about your struggles with access to pain care? What we learn from you can help us continue this work for others who live with different pain problems.

Please complete our Insurance Barriers to Fibromyalgia National Survey now!

We wish you hope and happiness in 2009.

The American Pain Foundation and the National Fibromyalgia Association

The above is the e-mail I received, and I am asking all of you with Fibromyalgia to take the survey, and to pass it on to others who have this illness or are affected by it. This organization has the ability to make our voices heard and affect change. Thank you for your participation and help.


Jeanne said...


Thanks for posting this! I just submitted my survey to the American Pain Foundation.

I hope you are doing well!!!

Take care,

Jeanne :)

Jeanne said...


I just found the APF screen still open from filling out APF survey and I can't remember if I commented back here! I think I actually did (in which case you can delete this one as a duplicate)!

In any event, thanks for the post here and I did do the APF survey you linked to! :)



Maureen Hayes said...


Thanks for taking the survey. It helps that people participate. Please let others with Fibro (or affected by someone with it) know about it.